DBSA 2013 Program Report

DBSA thanks our individual, corporate, and foundation partners for their generous support of the following programs in 2013. DBSA Annual Report 2012

Did you know that more than 3 million people receive support and information from DBSA? See the impact your support of DBSA had in 2013.

2013 Core Programs Delivered from General Operating Support

Your contributions were critical to DBSA’s ability to provide the following core services in 2013 that support our mission to improve the lives of people living with mood disorders.

Community & Peer Support: DBSA provides resources and support to maintain and enhance DBSA’s network of more than 287 chapters providing community education and offering more than 800 peer-led support groups that serve an estimated 53,478 people living with or affected by mood disorders.

Online Education & Tools: More than 757,238 people visit DBSA’s suite of online website to connect with life-saving information.

  • DBSAlliance.org and DBSAlianza.org connect individuals with in-depth information about depression and bipolar disorder, wellness options, peer support, and advice on how to help others. These materials are available 24/7 online via print, video, podcasts, webinars, web-streamed events, and online courses.
  • FacingUs.org is home to a wealth of customizable personal wellness tools to help people live a full, health, and happy life. Inside the Facing Us Clubhouse, guests and members can be inspired by personal videos of recovery; create a personal wellness plan; share wellness tips; chart their wellness with the DBSA Wellness Tracker; and much more.
  • DBSA’s growing social media channels connect tens of thousands of individuals seeking information and support through videos on the DBSA YouTube channel and informational posts on DBSA’s Facebook posts.

Printed Brochures: DBSA offers more than 30 printed brochures, CDs, and DVDs on specific topics related to mood disorders. Nearly 48,000 information-rich, scientifically-vetted, easy-to-read brochures were circulated in 2013 by DBSA and our chapters to individuals throughout the nation via requests to our toll-free number or online requests as well as in support groups, doctors’ offices, and mental health events. They are available online.

Toll-Free Referral Service: In 2013, DBSA connected more than 18,000 individuals to resources for support and assistance on a wide variety of concerns though our toll-free referral number; providing a friendly voice to help navigate challenging waters.

Community Engagement

DBSA Positive Six (+6): An innovative, six-month social media campaign focused on taking positive actions to improve individuals’ connection to their health and community. Each month Many through October DBSA featured a new +6 challenge aimed at strengthening connections to health, relationships, and community. More than 1,500 people accessed the Positive Six website in 2013.

Chapter Programs

Your 2013 general operating and sponsor support contributions allowed DBSA to provide ongoing assistance to DBSA Chapters and support groups to enhance and grow their chapters and increase their ability to provide support, education, and outreach in their local communities. Specific chapter programming supported through general charitable donations include

  • Chapter Management Web Portal
  • Chapter Facilitator Training
  • DBSA 2013 Chapter Leadership Forum
  • Partners in Mission Listening Sessions
  • Communication Enhancements through bimonthly paper mailings

Special Thanks to the Generous Supporters of DBSA Core Programming

  • Individual Donors
  • Carole B. Kenneth J. Boudreaux Foundation
  • Collaborative Care Initiative, LLC
  • Earl M. and Margery C. Chapman Foundation
  • Friends and Family of Patrick Mackey
  • Gordon H. and Karen M. Millner
  • Raymond M. & Jane E. Cracchiolo Foundation 
  • Wolfe Family Charitable Foundation

2013 Sponsored Programs and 2014 Program Support Received in 2013

WeSearchTogether.org
Developed in partnership with the University of Michigan Depression Center, WeSearchTogether.org is an online clearinghouse for research that advances depression, bipolar disorder and mood research through encouraging volunteer participation and enhancing community-researcher relationships. The website highlights the latest clinical trials and research advancements within the mental health field; provides detailed information on mental health clinical trial participation; allows people to browse study listings; gives testimonials from study participants and researchers; and matches people with specific research participation opportunities. More than 15,000 people connected with WeSearchTogether in 2013.

Special Thanks
DBSA thanks our WeSearchTogether partner, the University of Michigan Depression Center
WeSearchTogether was supported by the National Institutes of Health via grant # RC4 MH091975-01 and grant # UL1RR024986 from the National Center for Research Resources. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Center for Research Resources.

Bipolar Disorder Education YouTube Video Library
The DBSA Bipolar Disorder Education Video Library addresses common questions and concerns that people living with bipolar disorder and their loved ones often have. In each video, a peer shares their experience with issues such as dealing with stigma, identifying triggers, and working with clinicians. Speakers include individuals living with bipolar disorder, their loved ones, and professionals in the mental health field. Since launched in March, 2013, the videos have been viewed nearly 5,000 times.

Special Thanks
DBSA thanks AstraZeneca for their support for production, not content development, of the DBSA 2013 Bipolar Educational YouTube Video Series.

Bipolar Disorder Education Community Education Kit
To compliment the Bipolar Disorder Education YouTube Video Library, DBSA created a Community Education Kit which was distributed to all DBSA chapters for their use in their local community. The kit includes a PowerPoint presentation titled Demystifying Bipolar Disorder. This presentation focused on common myths and the facts that combat them. The presentation highlighted several of the videos to drive home personal experiences with triggers, stigma and helping a loved one who lives with bipolar disorder. Additionally, the education kit includes a sample flyer for announcing a community presentation of Demystifying Bipolar Disorder, as well as a guide for reserving space for the presentation, assuring the correct AV equipment and sample letters to local professionals to ask them to share the event with their patients. Also included is a press kit complete with a stigma-busting print PSA about bipolar disorder as well as a DVD of the videos, presentation, and all materials in electronic form.

Special Thanks
DBSA thanks AstraZeneca for their support for production, not content development, of the DBSA 2013 Bipolar Disorder Education Community Education Kit.

Demystifying Bipolar Disorder Webinar Training
To further aid DBSA chapters in presenting the Demystifying Bipolar Disorder program, DBSA recorded a peer giving the presentation through a webinar platform. This recording was then provided to all chapters so that they could see and hear how the presentation could be done. This webinar was also made available on the DBSA website for any visitors who would like to learn more about bipolar disorder.

Special Thanks
Production, not content development, of these educational materials was supported by a charitable contribution from Janssen Pharmaceuticals, Inc

CareForYourMind.org
DBSA worked in partnership with Families for Depression Awareness (FFDA) to start development on CareForYourMind.org, an online blog launched in May, 2013, created to engage peers and family members in critical discussions and decisions about mental health care. Care for Your Mind™ allows FFDA and DBSA to initiate and facilitate active dialogue about emerging policies and regulations that will determine the availability and quality of mental health care services to people with mood disorders and their families.

Special Thanks to Our Care for Your Mind Sponsors
DBSA acknowledges and thanks the Takeda Lundbeck Alliance for supporting the development of CareForYourMind.org. The Takeda Lundbeck Alliance’s involvement in Care for Your Mind (CFYM) is solely as a financial supporter. The Takeda Lundbeck Alliance was not, and is not, involved in the organizing of CFYM, creation of the content on CareForYourMind.org, or content or development of enduring materials created for or related to CFYM.

DBSA 2013 Grassroots Advocacy
In July, 2013, DBSA worked with the National Council for Behavioral Health to train 20 individuals from four states facing particular challenges with mental health legislation, policy, or regulatory issues as peer advocates. DBSA’s advocacy work in 2013 also focused on ensuring the voice of the lived experience is represented in D.C. and in forums across the nation where critical issues of mental health were being decided. DBSA’s participation and partnership in the Hill Day 2013, hosted by the National Council allowed peer voices to be heard on critical national mental health legislation. (Learn more in DBSA’s Advocacy Center.)

Special Thanks to DBSA 2013 Advocacy Initiatives Sponsors

  • AstraZeneca
  • Eli Lilly and Company
  • Forest Laboratories
  • The Takeda Lundbeck Alliance

DBSA 2013 National Conference
The DBSA 2013 National Conference, Stronger Together, was a weekend-long event that connected hundreds of individuals with a community of peers, with leading researchers in the field of mood disorders, and with the skills needed to discover and employ personal strengths for better living. Over the course of three days in sunny Miami, FL, Stronger Together delivered hope, help, education, and inspiration through moving keynote speeches, skills-based breakout sessions, support groups, and special events.

Educational sessions covered an array of topics, including personal wellness, non-pharmaceutical treatment strategies, life enhancing skills, and information on research advancements.

Friday, June 14—DBSA Chapter Leadership Forum: Stronger together as a community
Saturday, June 15—DBSA and ISBD Partnering for Success Joint Day: Stronger together as partners in wellness
Sunday, June 16—DBSA Embracing Wellness: Stronger together as peers embracing our inner strength

DBSA thanks the following investors in the DBSA 2013 National Conference:

  • Eli Lilly and Company
  • Lundbeck, LLC
  • Otsuka America Pharmaceuticals, Inc. 
  • Sunovion Pharmaceuticals, Inc.
  • Takeda Pharmaceuticals America, Inc.

Rebecca’s Dream 2013 Conference Scholarships
The demand for scholarships for the DBSA 2013 National Conference was high with over 100 individuals requesting support to attend the conference. The Rebecca’s Dream scholarship enabled twenty-one people to participate in this weekend of hope, education, and support.

  • (100%) of the scholars were either satisfied (30%) or very satisfied (70%) with their overall experience at the conference.
  • 100% of the scholars said they would recommend this conference to others.

Attending the conference changed my illness paradigm fully into recovery.
Stephanie, Rebecca’s Dream Scholarship Recipient

Out of the Blue: The Many Faces of Depression YouTube Video Series
Depression doesn't just look one way. Major depressive disorder affects more than 14 million adult Americans each year, and many don't attribute the range of symptoms they encounter to depression. In this series of videos, six individuals share their experiences with depression, including some of its less identifiable manifestations, which range from anger and irritability to feeling overwhelmed by a lack of focus and difficulty making decisions. Since launched in February, 2013, the videos have been viewed more than 4,000 times.

Special Thanks
DBSA acknowledges and thanks the Takeda Lundbeck Alliance for supporting the production of, not content development of, the DBSA Out of the Blue: The Many Faces of Depression YouTube Video Series.

DBSA Wellness Tracker App for iPhone® and iPod touch®
The DBSA Wellness Tracker is a free, innovative, and user-friendly online, and now phone, app that allows individuals to keep track of their mental, emotional, and physical health. The DBSA Wellness Tracker’s monthly reporting feature provides an at-a-glance summary of key health trends related to overall mood, mood disorder symptoms, lifestyle (including sleep, exercise, etc.), medication and side effects, and physical health. Since launched in May, 2013, the app has been downloaded by more than 3,500 people.

DBSA Choices Webinar Series
In 2013, DBSA first received support to begin the development of a series of four webinars focused on providing practical strategies to help adults living with mood disorders gain more personal control over their treatment options. The webinar series also reviewed tools designed to help individuals better construct a wellness plan, monitor their progress, and/or help with specific wellness strategies. The first webinar of the series was launched in September of 2014 with the proceeding 3 webinars launched in December 2014.

546 individuals viewed one or more of the four webinars in the series since the launch of the first webinar in September 2014. 96% of participants reported they would recommend the webinar series

Special Thanks

  • Forest Laboratories
  • Sunovion Pharmaceutical Inc.

2013 Scientific Advisory Board Reception
In 2013, DBSA held our annual Scientific Advisory Board (SAB) Reception on May 4, in New York, New York. To recognize and acknowledge the commitment and work often pioneered by our SAB members, DBSA holds an annual SAB Reception alongside the American Psychiatric Association’s annual meeting. The SAB reception provides an opportunity for fellow DBSA allied and community partners to connect with DBSA’s mission and staff as well as connect with and learn from our SAB members.  At the reception, DBSA also presents the distinguished Gerald L. Klerman Award to a senior and young investigator to recognize their outstanding contribution towards advancing mental health research.

Special Thanks

  • AstraZencea
  • Eli Lilly and Company
  • Forest Laboratories
  • Otsuka America Pharmaceutical, Inc.

FDA White Paper Proposal
DBSA has used its role as the leading peer-directed organization to respond to the Food and Drug Administration’s (FDA’s) inclusion of depression in their recent list of conditions to be studied for best practices concerning patient-engagement as part of the FDA Safety and Innovation Act (FDASIA’s). As a follow-up to the comments, DBSA is meeting with the FDA at their office in Maryland. During this meeting we will offer our resources as the voice of the patient to assist them in developing further patient outreach as they execute their mission.

Special Thanks
Eli Lilly and Company

Teen Mental Health Issues
In 2013, DBSA offered the following resources and programming targeted to teens and young adults.

  • 84 DBSA Support Groups serving teens/youths
  • Distribution of our child and teen educational brochures
    • Is It Just a Mood…Or Something Else? Mood Disorders for Young People
    • The Storm in My Brain: Kids and Mood Disorders
  • Family Resources and Support on FacingUs.org
  • Family Resource Center on DBSAlliance.org

Special Thanks
The Henry Foundation

The DBSA and The Balanced Mind Foundation Alignment
In 2013, DBSA and The Balanced Mind Foundation began the process of joining forces to improve the mental health of, and facilitate wellness for, individuals living with mood disorders from childhood throughout adulthood. Under a single organization, we have a greater potential, through early intervention, to help reduce the severity of mental health issues for children as they grow. We will be able to provide consistent support as they transition from childhood to adulthood and throughout their lives. We expect the transition to DBSA to take place on January 1, 2014.

Special Thanks
SeaChange-Lodestar Partners for Nonprofit Collaboration