Family Resources

 


 

Doctors and Clinicians

DBSA Find a Pro
Find a Mental Health Professional
www.dbsalliance.org/findapro

American Academy of Child and Adolescent Psychiatry (AACAP) Doctor Directory
Comprehensive searchable directory of all AACAP members as well as their areas of specialty and interest.

Doctor Disciplinary Information by State
Check licensing and disciplinary actions

Drug Database
www.webmd.com/drugs

Report a Complaint
Have you had a negative experience with a hospital or clinic? The Joint Commission for Accreditation of Healthcare Organizations (JCAHO) is an independent, not-for-profit organization that sets the standards by which health care quality is measured in America and around the world, and does on-site reviews of more than 16,000 health care organizations (see list on their site).

UPMC Bipolar Institute Consultation Service
Drs. Boris Birmaher and David Axelson offer a second-opinion consultation service which provides a comprehensive psychiatric evaluation for children and adolescents with severe mood problems.
www.upmc.com/Services/behavioral-health/Pages/bipolar.aspx 

 

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Anti-Stigma and Advocacy

Bring Change 2 Mind
A national anti-stigma campaign founded by Glenn Close, The Balanced Mind Parent Network, Fountain House, and Garen & Shari Staglin of the International Mental Health Research Organization (IMHRO), aimed at removing misconceptions about mental illness.
www.bringchange2mind.org/

LETS
Lets Erase the Stigma empowers youth to educate each other and communities about mental illness, provide access to resources for those who need it, and connect kids with others who care. Whether you're a kid in middle or elementary school, an older student with a young heart, LETS can help you erase the stigma.

 

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Complementary and Alternative Medicine

National Center for Complementary and Alternative Medicine
This division of the National Institute of Health (NIH)  conducts and supports research, trains CAM researchers, and provide information about CAM.
nccam.nih.gov/

BMC Complementary and Alternative Medicine(journal)
The journal of the International Society for Complementary Medicine Research
www.biomedcentral.com/bmccomplementalternmed/

 

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Education

Going to College
A resource for teens with disabilities
www.going-to-college.org/

Transition Year
Online resource center to help parents and students focus on emotional health before, during and after the college transition.
www.transitionyear.org/

National Association of Therapeutic Schools and Programs
natsap.org/

Independent Educational Consultants Association
www.educationalconsulting.org/

Stand Tall Against Bullying Preview
STAND TALL is a video-based educational program that educates teachers and students in Grades 4-6 about how to respond to disrespectful behavior. Watch a preview here.

International Survivors Action Committee
ISAC is a watchdog organization, focused on exposing abuse, civil rights violations and fraud perpetuated through privately-owned facilities for juveniles.

Residential Treatment Centers - 15 Questions to Ask
The Bureau of Consumer Protection's publication for parents considering Residential Treatment placement for their children.
www.ftc.gov/bcp/edu/pubs/consumer/products/pro27.pd

Characteristics of Residential Treatment For Children & Youth with Serious Emotional Disturbances
A report from Abt Associates prepared for the National Association of Psychiatric Health Care Systems (NAPHS) and the National Association for Children's Behavioral Health (NACBH).
www.naphs.org/documents/AbtFINALReport.8.4.08_000.pdf 

SchoolMentalHealth.org An online clearinghouse of information for parents, students, clinicians and educators.
www.schoolmentalhealth.org

Technical Assistance Alliance for Parent Centers
State-by-state list of advocacy resources
www.parentcenternetwork.org/allregions.html

Financial Aid Information for Students with Disabilities
Provides financial aid information geared towards students with disabilities.
www.washington.edu/doit/Brochures/PDF/financial-aid.pdf

Heath Resource Center at the National Youth Transitions Center
An online clearinghouse on postsecondary for individuals with disabilities.
www.heath.gwu.edu/ 

 

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International

Befrienders Worldwide
Works worldwide to provide emotional support, and reduce suicide. We listen to people who are in distress. We don't judge them or tell them what to do - we listen.  Search the database for helplines in countries around the world.
www.befrienders.org/index.asp 

Equilibrium - The Bipolar Foundation
A nonprofit organization based in the UK with an international focus.  The website includes a listing of international resources.
www.bipolar-foundation.org/

International Bipolar Foundation
A comprehensive list of resources for bipolar disorder in over 30 countries.
www.internationalbipolarfoundation.org/resources-and-links

World Federation for Mental Health
Global mental health directory can be searched by country, organization or disorder to locate resources world wide.

 

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Legal

Student Mental Health and the Law
This guide is geared towards college faculty and staff, but provides information helpful to students transitioning to or currently attending college, and their parents. Provides clarification of FERPA, disability law and other legal issues colleges face. Incorporates the most recent pieces of legislation that impact student mental health:  the Americans with Disabilities Act (ADA) Amendments Act of 2008 and the Paul Wellstone and Pete Domenici Mental Health Parity and Addiction Equity Act of 2008. 

International Survivors Action Committee
ISAC is a watchdog organization, focused on exposing abuse, civil rights violations and fraud perpetuated through privately-owned facilities for juveniles.

The Balanced Mind Parent Network's "Legal Issues of Pediatric Bipolar Disorder" guide
www.dbsalliance.org/site/PageServer?pagename=bmpn_learn_legal_issues

 

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Legislation

Send a message to Congress
www.congress.org

Joseph P. Kennedy, Jr. Foundation's Policy Guide
A guide to public policy work on behalf of individuals with intellectual and developmental disabilities and their families. Information and articles about making federal policy: brief descriptions of key Congressional committees, Executive branch agencies, federal legislation and judicial decisions that are most significant for people with disabilities.
www.jpkf.org/JPKF-Policy-Guide/

 

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Medications

Bipolar Medication Guide for Parents
A guide developed by the American Academy of Child & Adolescent Psychiatrists to inform parents about to how to obtain a complete psychiatric evaluation for their child and to provide a brief explanation of the various treatment options so parents can make knowledgeable decisions for their children.
PDF Version

Depression Medication Guide for Parents (updated 2010) The Balanced Mind Parent Network-endorsed FAQ from the American Psychiatric Association and the American Academy of Child and Adolescent Psychiatry on the use of medication in treating childhood and adolescent depression.
Link - PDF version

Discover Health Drug Interaction Checker: Interactions between drugs can be dangerous. Use the drug checker tool to see which combinations might be harmful. resource temporarily unavailable

International Bibliographic Information on Dietary Supplements (IBIDS):
A database of published, international, scientific literature on dietary supplements, including vitamins, minerals, and botanicals. IBIDS is produced by the Office of Dietary Supplements (ODS) at the U.S. National Institutes of Health to assist the public, health care providers, educators, and researchers in locating credible, scientific information on dietary supplements.
ods.od.nih.gov/databases/ibids.html

The National Library of Medicine
Offers free access to Medline, a searchable database of abstracts from over 4,000 biomedical journals, and many other resources for further reading.
www.nlm.nih.gov/medlineplus

DSM-IV TR: Behave-Net numerical listing of codes and diagnoses
www.behavenet.com/dsm-iv-tr-numerical-listing-codes-and-diagnose

MedTerms.com Medical Dictionary
www.medterms.com/Script/Main/hp.asp

Madison Institute of Medicine - comprehensive collection of information on lithium, bipolar disorder, obsessive compulsive disorder and many other mental illnesses.
www.miminc.org

Brain and Behavior Research Foundation (formerly "NARSAD")
The largest non-government, publicly funded organization that distributes funds for brain disorder research.
www.bbrfoundation.org

Surgeon General's Report on Mental Health
www.surgeongeneral.gov/library/mentalhealth/home.html


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Medication Assistance Programs

Information on Free Medications for Low-Income Families
www.nami.org/helpline/freemed.htm

Needy Meds
www.needymeds.com

The Medicine Program
www.themedicineprogram.com

Insure Kids Now
www.insurekidsnow.gov

State Medicaid Programs
www.medicaid.gov/Medicaid-CHIP-Program-Information/By-State/By-State.html (see also www.medicaid.gov/State-Resource-Center/State-Resource-Center.html)


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Mental Health- Children and Teens 

Strength of Us
Schools for Hope is a new curriculum project developed by iFred, the International Foundation for Research and Education on Depression. It is based on research that suggests hope is a teachable skill. The project’s aim is to equip students, educators, and parents with the tools they need to find and maintain hope even during the most trying of times.
http://schoolsforhope.org

About Our Kids
Child and adolescent mental health and parenting resource from the NYU Child Study Center.
www.aboutourkids.org/families

About Our Kids on Doctor Radio
Weekly radio broadcast on SIRIUS Doctor Radio (CH 114), bringing you essential information and advice about child, teen, and family mental health, produced by the NYU Child Study Center.
www.aboutourkids.org/sirius

BPChildren.org
Features information, publications, and resources for young people and adults to help them understand pediatric bipolar disorder.
www.bpchildren.org 

CHADD
Child and Adult Attention Deficit Disorder provides information and resources regarding ADHD.
www.chadd.org

AACAP Resource Centers
The American Academy of Child & Adolescent Psychiatry's website features helpful information and resources for parents regarding anxiety disorders, depression, conduct disorders, oppositional defiant disorder, as well as a disaster and trauma resource center.
www.aacap.org/cs/resource.centers

Effective Child Therapy
A website from the Society of Clinical Child and Adolescent Psychology (SCCAP) and the Association of Behavioral and Cognitive Therapies (ABCT), providing parents and clinicians with accurate, up-to-date information on evidence-based psychosocial treatments for children and adolescents.
www.effectivechildtherapy.com

Erika's Lighthouse
A Beacon of Hope for Adolescent Depression.  At Erika's Lighthouse, we strive to break stigma and educate our community about adolescent depression and mental health issues through various programs directed towards schools, teachers, parents, physicians and other healthcare professionals, and teens themselves.
www.erikaslighthouse.org

National Federation of Families for Children's Mental Health
National Federation of Families for Children's Mental Health is an advocacy organization for families of children and youth with mental health needs. The Federation provides an opportunity for family members to work with professionals and other interested citizens to improve services for their children with emotional, behavioral or mental disorders.
www.ffcmh.org

Assistance for Transition-Age Youth
The Bazelon Center has identified 57 programs, run by 20 or more different agencies in nine departments of the federal government. Moving On is a collection of fact sheets on these programs. Note: you may either download or order this publication in brochure format on this page.

Getting an Accurate Diagnosis for your Child: 10 Steps for Families
Ten steps families should take to help their mental health service provider make an accurate diagnosis; a resource of the National Alliance on Mental Illness.

The REACH Institute
Commited to accelerating the acceptance and effective use of proven inteventions that foster children's emotional and behavioral health. In their Resources for Family section REACH features disorder profiles, treatment options, parent advocate training, and other REACH projects.
www.thereachinstitute.org

REACHOUT.com
Produced by SAMHSA this site has videos, audio clips and stories by teens directed towards teens.  Addresses issues of mental illness, suicide, self injury, relationships, moving towards independence, school issues, maintaining health and much more.
us.reachout.com/index.php

Residential Treatment Centers - 15 Questions to AskThe Bureau of Consumer Protection's publication for parents considering Residential Treatment placement for their children.
PDF

Sibling Support Project
A national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns. Offers a listserv (email discussion group) for kids, and workshops on sibling issues to audiences of parents, service providers,  university staff and students, and siblings of all ages.
www.siblingsupport.org

Transition Year
Online resource center to help parents and students focus on emotional health before, during and after the college transition.
www.transitionyear.org


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Mental Health- All Ages

International Bipolar Foundation
Works to eliminate Bipolar Disorder through the advancement of research; to promote and enhance care and support services; and to erase associated stigma through public education.
www.internationalbipolarfoundation.org

International Mental Health Research Organization (IMHRO)
Committed to funding research and raising awareness to help people with brain disease, and, ultimately, find cures for schizophrenia, depression and bipolar disorder.
www.imhro.org

Bipolar Disorders Treatment Information Center At the Madison Institute of Medicine in Madison, Wisconsin with more than 10,000 references already on file, the center collects and disseminates information about medications and other forms of treatment for bipolar disorder.
www.miminc.org/aboutbipolarinfoctr.asp

BPSO
Support and information for Significant Others of those who have Bipolar Disorder.
www.bpso.org

Substance Abuse & Mental Health Services Administration - Publications
A comprehensive mental health site from the U.S. government with a wealth of free publications and resources on bipolar disorder and related issues like stigma, depression, anxiety, and other childhood brain disorders.
www.mentalhealth.org

Depression and Bipolar Support Alliance (DBSA)
DBSA provides hope, help, support, and education to improve the lives of people who have mood disorders. Because DBSA was created for and is led by individuals living with mood disorders, our vision, mission, and programming are always informed by the personal, lived experience of peers.
www.dbsalliance.org

Families for Depression Awareness
A nonprofit organization providing educational information, community outreach training,and advocacy to help families and friends recognize and cope with bipolar and major depression.
www.familyaware.org

Mental Health Parity Act
Information about the Mental Health Parity and Addiction Equity Act of 2008.
Fact Sheet

McMan's Depression and Bipolar Web
A free, informative, and lively digest of research, treatment, public policy, and the media, by John McManamy. Highly recommended.
www.mcmanweb.com

National Alliance on Mentall Illness (NAMI)
www.nami.org

National Institute of Health (NIH) Undiagnosed Diseases Program
Using a combination of scientific and medical expertise and resources at the NIH, this program works to provide answers to patients with mysterious conditions that have long eluded diagnosis, and to advance medical knowledge about rare and common diseases.
rarediseases.info.nih.gov/Resources.aspx?PageID=31

Reproductive Psychiatry Resource and Information Center
Massachusetts General Hospital's Center for Women's Mental Health presents information on psychiatric disorders during pregnancy, breastfeeding and psychiatric medicine, PMS and PMDD, and more.
www.womensmentalhealth.org

Stanley Medical Research Institute (SMRI)
SMRI is a nonprofit organization supporting research on the causes of, and treatments for, schizophrenia and bipolar disorder. It is the largest nongovernmental source of funds for research on these diseases in the United States.
www.stanleyresearch.org


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State Resources

Find a Mental Health Professional Local Resource Directory
www.dbsalliance.org/findapro


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Suicide

American Association of Suicidology
Promotes research, public awareness programs, public education, and training for professionals and volunteers.
www.suicidology.org

American Foundation for Suicide Prevention Dedicated to understanding and preventing suicide through research and education, and to reaching out to people with mood disorders and those impacted by suicide.
www.afsp.org

Befrienders
International website with information and resources for suicide prevention including a listing of helplines available in countries around the world.
www.befrienders.org

Compassionate Friends
"Our mission is to assist families toward the positive resolution of grief  following the death of a child of any age and to provide information  to help others be supportive."
Phone: (877) 969-0010
www.compassionatefriends.org

The Karla Smith Foundation
Offers support and services to family members and friends of those affected by mental illness and suicide.
www.karlasmithfoundation.org

Suicide Prevention Action Network
Dedicated to preventing suicide through public education and awareness, community action, and federal, state, and local grassroots advocacy.
www.spanusa.org

Suicide Hotlines

National Hopeline Network: (800) 784-2433

National Suicide Prevention Lifeline: (800) 273-8255
Suicide hotline, 24/7 free and confidential.

National Youth Crisis Helpline: (800) 442-4673


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Other Resources

Anxiety and Depression Association of America
www.adaa.org

The Child Network
The Child Network, an initiative between the Bipolar Collaborative Network and Johns Hopkins University School of Medicine, is a new study to collect data on the treatment of child mood disorders. The Child Network includes a tool for parents of children aged 2-12 to rate on a weekly basis the severity of their child’s symptoms of depression, anxiety, ADHD, oppositional behavior, and mania on a secure website.  The ratings can then be printed out and taken to a clinician for ease of visualization of symptom course, need for treatment, and effectiveness of any treatment given.
http://bipolarnews.org/?page_id=2630

DNA From the Beginning:
An animated primer on the basics of DNA, genes and heredity. Beautifully illustrated, clearly written, and searchable, by Cold Spring Harbor Web.
www.dnaftb.org/dnaftb

Employer's Guide to Child and Adolescent Mental Health
A new guide designed to help employers improve the delivery of child and adolescent behavioral health services and provide services for family caregivers, was officially released by the National Business Group on Health, a national non-profit organization representing more than 280 mostly large U.S. employers.
PDF

The Endocrine Society
The Endocrine Society is the world's oldest, largest, and most active organization devoted to research on hormones, and the clinical practice of endocrinology. Endocrinologists are specially trained doctors who diagnose, treat and conduct basic and clinical research on complex hormonal disorders such as diabetes, thyroid disease, osteoporosis, obesity, hypertension, cholesterol and reproductive disorders.
www.endo-society.org

Helping Children and Adolescents Cope with Violence and Disasters
What Parents Can Do?

National Child Abuse Defense & Resource Center
Advocacy organization for parents falsely accused of child abuse, including Munchausen’s by Proxy Syndrome.
www.falseallegation.org

National Eating Disorders Association (NEDA)
NEDA supports individuals and families affected by eating disorders, and serves as a catalyst for prevention, cures and access to quality care.
www.nationaleatingdisorders.org

National Respite Locator ServiceState by state directory of respite services.
www.archrespite.org/respitelocator

PatientTravel.orgis a service of the National Patient Travel Center, providing information on charitable, long-distance medical air transportation.
www.patienttravel.org

S.A.F.E. Alternatives (Self Abuse Finally Ends)A 30-day treatment program for self-injurers such as adolescents who cut or burn or otherwise harm themselves. Web site provides information about this increasingly common behavior and suggests coping strategies and book, Bodily Harm.
www.selfinjury.com/resources/faqs/

Scholarships:
www.bipolar-lives.com/bipolar-scholarships.html
www.reintegration.com
peacecharlie.com/

Summer Camps
A comprehensive directory including special programs for children and teens with various diagnoses facingemotional, behavioral, learning, and social challenges.
www.mysummercamps.com


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Resources for Teens & 20s

Daily Strength
Online support networks, including "Bipolar", "Bipolar-Teen", "College Stress", and many more. This site also has an "Ask an Expert" feature.
www.dailystrength.org

National Alliance on Mental Illness
Mental health support, education, and advocacy. Discussion boards, articles on different mental disorders and medications.
www.nami.org

Half of Us
Get tips on how to fight the stress that comes along with mental health issues, and hear others' stories.
www.halfofus.com

National Eating Disorders Association (NEDA)NEDA supports individuals and families affected by eating disorders, and serves as a catalyst for prevention, cures and access to quality care.
www.nationaleatingdisorders.org

SPILL
provides confidential online peer support for college students to vent about a wide range of issues; everything from roommates to romantic relationships, anxiety to abuse, family problems to finances, and much more.
www.spillnow.org

Transition Year
Online resource center to help parents and students focus on emotional health before, during and after the college transition.
www.transitionyear.org


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